In January, 2012, I wrote an article: The ESA ‘Revolving Door’ Process, and its Correlation with a Significant Increase in Deaths amongst the Disabled and I discussed the distress and harm that the current government work capability assessment is causing disabled people. I said:
Many claimants have described a “revolving door” process of endless assessment, ceased Employment Support Allowance (ESA) claim, (based on an outcome of almost invariably being wrongly “assessed” as fit for work), appeal, successful appeal outcome, benefit reinstated, only to find just 3 months later another assessment is required. The uncertainty and loss of even basic security that this process creates, leading to constant fear and anxiety, is having a damaging, negative impact on the health and well-being of so many.
A significant proportion of those required to have endless assessments have very obviously serious illnesses such as cancer, kidney failure, lung disease, heart disease, severe and life threatening chronic conditions such as multiple sclerosis, lupus, myalgic encephalomyelitis, rheumatoid arthritis, brain tumours, severe heart conditions, and severe mental health illness, for example. To qualify for ESA, the claimant must provide a note from a doctor stating that the person is unfit for work. There can be no justification for subjecting people who are so ill to further endless assessments, and to treating us as if we have done something wrong.
Marginalising and stigmatising sick and disabled people, amongst whom are some of our most vulnerable citizens, via propaganda in the media, using despiteful and malicious terms such as “workshy” and “feckless” is a major part of the Government’s malevolent “justification” to the public for removing the lifeline of support from the sick and disabled. We are climbing Allport’s Ladder…
In addition to very justified anxieties regarding the marked increase in disability hate crime that the Tory-led propaganda campaign has resulted in, many sick and disabled people have also stated that they feel harassed and bullied by the Department of Work and Pensions and Atos. Many talk of the dread they feel when they see the brown Atos envelope containing the ESA50 form arrive through the letter box.
The strain of constantly fighting for ESA entitlement and perpetually having to prove that we are a “deserving” and “genuine” sick and disabled person is clearly taking a toll on so many people’s health and well being. Many families of those who have died have said that the constant strain, anxiety and stress of this revolving door process has contributed significantly to their loved ones’ decline in health and subsequent death. The figures from the DWP, and the marked contrast between the ESA and IB death statistics certainly substantiate these claims.
Leonard Cheshire, a charity that works with disabled people, surveyed 350 people who had been through the workplace capability assessment, which is used to establish whether benefit claimants are well enough to return to work.
More than six in 10 (65 per cent) of those who had gone through the process said they had ended up with more pain afterwards. Almost three quarters (72 per cent) said they found the assessment had a negative impact on their mental or physical health, or both. The same number described the face to face appointment as very stressful.
A teacher who was medically retired in 2011 due to progressive rheumatoid arthritis, said she left her appointment “feeling absolutely awful and suffered a lot of pain in the following days”. She went on to suffer a stroke a few weeks later, and believes the experience of undertaking a work fitness assessment was a contributing factor.
Andy Cole, campaigns director for Leonard Cheshire, said:
“This isn’t acceptable and no test should put someone through something that makes their condition worse.
We have known for a long time that this is an important issue. We had anecdotally hear this information but, [getting] it quantified in this way in quite such significant numbers, we were really surprised to see that it was this sort of figures.”
Harm may be caused by assessors because they did not have sufficient information about patients’ conditions. Less than half (42 per cent) said their assessor had evidence of their condition prior to the meeting. Only 21 per cent agreed with the statement:
“The assessor let me explain how my condition [or] disability affects me differently on different days or at different points during the day.”
Two thirds disagreed with the outcome of their assessment.
Mr Cole added:
“Some of the conditions are well documented through medical data going back decades. If that was used better there wouldn’t be a need for a test in the first place. It’s worth remembering that the test was fundamentally supposed to be about a benefit that helped people back into work. There are lots of issues around the test about whether it’s been able to achieve that.”
The research relates to the period during which the private company Atos was responsible for carrying out the assessments. Its work has ended after it pulled out of a government contract to manage disability claims early, and the American company Maximus has taken over delivery of the assessments from 1 March 2015.
The charity is calling on Maximus to take the findings of its survey into account when redesigning the fitness for work assessment process. It wants to see staff trained in specific medical conditions, (as most Atos assessors are non-specialised nurses or occupational therapists,) physical examinations restricted to cases of absolute necessity and for claimants to be aware they can say no to an examination if it will cause them pain.
However, a spokesman for the Department of Work and Pensions said:
“Healthcare professionals always take consent for any physical examination and ask claimants to tell them if any movement is uncomfortable. Examinations are not completed if they cause pain. Sufficient information is usually obtained through discussion, observation and a limited physical examination to assess the effects of disability.”
We know this to be untrue because of the high numbers of people needing to challenge wrong decisions.
One such person is Sharon Majek, 57, from Rugby, who has been unable to work since her mid-thirties after suffering a serious injury at work. She stopped an elderly patient from falling out of bed badly hurting her back. She was diagnosed with osteoarthritis, degenerative disk disease and fibromyalgia, leaving her in constant joint pain and with limited sensation in her hands.
She described her assessment as “traumatic”. She said:
“The doctor never made eye contact with me once, and that made me feel very uncomfortable. I was awaiting a knee replacement. He asked me to bend my knees. When I said I couldn’t he pushed it back. I was sweating with the pain. It swelled up later that day.”
Ms Majek was found fit for work so she asked to see a copy of her report, which she and her husband described as unrecognisable from the meeting they had attended. The decision was overturned at appeal. This is a very common and unacceptable experience amongst people claiming ESA.
Thanks to Robert Livingstone for the memes